A promising violinist needs a life-saving operation

A promising violinist needs a life-saving operation

News

norman lebrecht

October 30, 2023

Professor Alexander Gilman of the Royal College of Music is raising funds to save the life of a boy violinist:

I’ve known Nabil since he was 6 months old. The news of his devastating illness has left me in utter disbelief. Nabil’s life has beec stolen from him, and it’s a profound tragedy that we can’t ignore.

Nabil has been diagnosed with tethered cord syndrome and hypermobile EDS, and he’s scheduled for a critical surgery in the US in just one month, with a staggering cost of $88,742, not to mention additional hospital and travel expenses.

Your donation of just ten pounds can make a world of difference for this brilliant young musician. Let’s come together to give Nabil the chance to rebuild his life and fulfill his dreams.

Nabil writes:
Hi, my name is Nabil. I’m 11 years old and for the past two years I’ve spent 38 weeks in 13 different hospitals. I’ve been confined to wheelchair for the past 18 months because I can’t move my legs. I’ve not been to school since November of 2021 and can’t play the violin and piano any more like I used to before I got sick. I was recently diagnosed with tethered cord sydrome/hypermobile EDS and am schedule for surgery in a month. I want nothing more than to go back to school and to be able to once again play the piano and the violin. Thank you for considering helping me!’

 

You may make a donation here.

Comments

  • Cecily says:

    Thanks for your input as it is always important to tread carefully. However, that applies to all parties. With this in mind I note that nowhere does the writer, or the little violinist state the reason for their unfortunate situation – -just truthfully stated that it had occurred.. I feel so sad for them.

    • Rene says:

      Now that is a worthy reaction. Poor Family.

    • Guest says:

      Cecily, I agree with you, I feel very sad for them too. If you are interested, you can find more on internet, I didn’t want to add it here. And if you look on the thumbs down on my comment, you will understand why either the writer, nor the little violinist state the reason.

      • Alexander Gilman says:

        Thank you for your very helpful comment. To clarify some things and ensure that I am telling the truth: Nabil spent 38 weeks in 13 different hospitals. During this time, dozens of different diagnoses were made. If any of them had been correct, I wouldn’t be asking for help to get him to the States, where his parents hopefully found the correct hospital with the right diagnosis to treat this boy. Now, since you hide your name, I have no clue whether you are a doctor or not. However, I am certainly not one, and that’s why I’m seeking help based on the latest diagnosis made by experts

    • Guest says:

      I mean, why either the writer, nor the little violinist do not state the reason.

      • Alexander Gilman says:

        Reason?
        A very close person to me suffers from dementia. Can you provide me with a reason for that? Another died of cancer. What is your reason for that? Nobody knows what made Nabil sick. So let’s please spend all the energy on helping this boy instead of sharing opinions about vaccination. Thank you!

  • Hmus says:

    Medical disinformation troll links to her own assertion on Twitter, not to any facts. Suggest you remove this, Norman.

  • Sue Sonata Form says:

    This is just absolutely dreadful. I can’t imagine the distress and pain for the young boy and his family.

  • Name withheld says:

    Norman, you have a Twitter account. Did you READ Guest’s link before approving it? If so, do you really believe that conspiracy theorist “Nashville Angela” (whose whole account is based on “Reporting coincidences” and cites a different person with every tweet) knows more about this case than Professor Gilman at RCM? She and Guest are promoting – IMO – dangerous misinformation.

    Since you have allowed that post on SD, i.e. published it for all the world to see, it’s only fair to the boy’s family for you to at least alert them, and/or Professor Gilman, to what has been publicly said about them – without one iota of proof – and give them the right of rebuttal.

    There are two different scenarios here, and they don’t add up. One provides firm information and uses proper names, the other is anonymous, fact-free, vague, and insinuating. I know which of them I believe.

    You should remove Guest’s post unless and until some basis of truth can be established. This allegation is deeply unfair to an already suffering family. And I’ll bet they’re not even aware of it.

  • Name withheld says:

    What doctors? Where? Provide some details.
    If you’re going to make targeted allegations, you need to back them up with proof, not just unsubstantiated Twitter gossip.

    The things that are wrong with this boy have been clearly outlined, and they’ve got nothing to do with Covid or its vaccines. You’re endangering his chance of getting the help he urgently needs by using him to push your anti-vax agenda.

  • Nova Pilbeam says:

    Please provide the citation where his primary care physicians corroborates your claim.

  • Unvaccinated says:

    All that for the rebranded flu. Hopefully he is due compensation.

  • Sophia says:

    My first response was to offer a donation, but my second was to question the veracity. Some fool on Facebook has just posted a picture of a car destroyed in car accident stating that my nephew, his cousin and 8 others were killed. There were 4 more similar posts using my nephew’s and other family members’ names. He never posts on Facebook, so how did this happen? All online requests for money from unknown people should be thoroughly investigated. I do not understand why this boy’s defenders do not realize this.

  • Backdoc says:

    Two conditions, one very real, the other highly controversial.
    Tethered Cord – a congenital problem, and surgery has a clear role to play. It is not complex surgery, but there may not be improvement of any neurological problems afterwards. It is done to reduce the risk of further deterioration
    EDS – there are reasons why spinal surgeons in the UK very very rarely operate for this condition.

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