A pianist overcomes weak arms to make a career
NewsThe Californian pianist, Emily Phan, has been writing in Newsweek how she survived infantile spasms and a rare genetic condition to emerge as a professional artist.
Emily, now 26, relates:
At six months old I had a grand mal seizure. I was in my grandmother’s arms and I turned blue. After that I started having infantile spasms (IS)…My parents then took me to hospital for an MRI scan, but initially they were told that the MRI was completely normal. Luckily there was one doctor who then contacted my parents in the middle of the night to tell them that she had diagnosed my condition as tuberous sclerosis complex (TSC), a rare genetic condition that causes benign tumors to grow in the body…
Read on here.
brava. truly